Isaac has a blood disease called thalassemia. His bone marrow makes deformed red blood cells, so he needs a blood transfusion once every 3 or 4 weeks. In addition to that, he receives chealation therapy which involves taking a pill everyday to help draw out excess iron in his blood. Scientists are working on a cure for thalassemia and have successfully cured a few people with bone marrow transplants. It is still very risky and requires a perfect sibling match.
His disease is very expensive to treat, but insurance is helpful. Although his first month home will be filled with all kinds of doctor appointments, we should settle down to a routine that is not too intrusive in our daily life. He has no restrictions on his activities and he likes to play like all 10- year- old boys. We will have to watch our consumption of iron-rich foods. Red meat and packaged cereal are the biggest foods to cut back. That will be good for everyone!
His biggest special need is the same as yours and mine -- he needs someone to love him and tell him about the Father and his Son.
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